Last night my wife and I watched a documentary called “The Last Great Medical Cover Up”. It was the story of a number of individuals living with ME. It was upsetting on so many levels. The glaringly obvious missing element was “hope”. It appeared that none of the participants had ever been given any real expectation of recovery and had little or no hope at this point. That is the real tragedy.
I have ME. I can relate to everything said in the film. I can relate in particular to “Mike” as I guess we are roughly the same age.
My blog outlines my journey from first symptoms to where I am today. I decided to create the blog as I found it very difficult to get information about the condition and in particular on recovery. I wanted to share my experiences with others who find themselves in the same or similar position.
I have the condition for over four years now. I am recovering. Sometimes it is difficult to know if I am better or if I am managing better, but my life has improved dramatically, in particular over the last two years.
“I can do anything I want but I can’t do everything!”
And I accept that (for now). I continue to challenge the way I feel and push myself for further improvement. My life and my attitude to life has changed immeasurably over the last 4 years because of the condition. I am a better person because of it.
The most important influence along the way, was conversations I had with four others who had recovered from ME. Their stories gave me the “hope” and “belief” that I too would get better. In some cases it took three to four years, one was seven and one twelve. It didn’t matter how long it took. It was possible to get better and that is where my focus has been.
I see and hear so much negative comment about the condition and I can relate to all of it. But there are success stories out there and sufferers need to access those too if they are to have that essential element in their tool kit. That element is “hope”. Not just a crazy dream but a hope based on the real experiences of others.